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Rare genetic disease kills 2-year-old best man

10:03 AM, Aug 6, 2013   |    comments
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(USA TODAY) - Logan Stevenson, the 2-year-old boy suffering from a rare genetic disease who served as best man at his parents wedding, has died, his mother said in a Facebook posting.

Christine Swidorsky married Logan's father, Sean Stevenson, Saturday in Jeannette, Pa.

"Today Logan was doing very bad. His breathing was very rapid then slowing down. I called hospice to come, and she checked him out and she said he's probably gonna pass," Swidorsky posted on Facebook late Monday night. "Sean and I held him all day. He was comfortable with his medication, then at 8:18 my son took his last breath in my arms."

"Logan passed away. I'm so sad upset and I'm in disbelief. He is with angels and he's in no more pain. No more sickness no more hospitals. We love all of you for all your prayers. Thank you all for caring, God bless you all! And most of all God bless Logan. I'll see you in my dreams my son."

Logan was born with Fanconi anemia, a disease that mainly affects the bone marrow and decreases production of blood cells.

The Stevensons abandoned an original wedding date of July 2014 after learning from doctors late last month that their son had two to three weeks to live. His parents moved up the date of their wedding so Logan could take part in the ceremony. The couple wanted Logan to see them marry and to be part of family photos.

After a whirlwind week, the Jeannette couple tied the knot in a hastily arranged backyard ceremony that formalized their union and celebrated Logan's life. Logan stood in a tan, pintstriped suit and orange shirt with his grandmother, Debbie Stevenson, during a 12-minute ceremony.

Swidorsky's daughter, Isabella Johns, 13, served as bridesmaid and the couple's 1-year-old daughter, Savannah, was her parents' flower girl.

"We're married," Swidorsky exclaimed after kissing her groom to applause from family and friends. "This is our dream come true."

USA TODAY

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